Maybe Someday

We headed to an event, The Hoosier Star. We got all dressed up. Tristan took a long nap during the day. Tristan and I made his favorite dinner. Everything was perfect for a night out. With the exception that we know when we go out to any activity, there is a chance we will only stay for part of the event.

We had a picture of the events on his device. I explained to him where we were going and what to expect. On paper, it looked like it would be a successful night out. Until it was not.

We left after intermission. A meltdown out of nowhere emerged. We have learned to exit quickly!

On the drive home, I remuniated over what we could have done differently. Nothing came to mind. I have to remember we all have good and bad days. Tristan is only able to communicate to a certain level. He became agitated for whatever reason. I looked at Brian and said, “Maybe someday we will last the entire event when he gets a bit older.” I was trying to convince myself that it is okay, even though it stings a bit that we have not mastered community events. Taking Tristan out and enjoying different experiences is best, even in slices.

And this is where he is forever. That is okay, too. I will keep adjusting my expectations to match his developmental age.

Book Review – #1 Recommendation

For some, autism is a new topic. When Tristan was in therapy, and the diagnosis was not concluded, I read every book I could find at the library on this topic. There were many books. I am still determining how I found the time to read, except being at home full-time required me to keep my brain fresh by soaking in reading whenever possible. I would have reading material nearby if he was in the bathtub or sandbox.

Practical Tip #53 – Offer Choices

It was pointed out to me by a case worker to offer Tristan choices throughout his day. Raising a forever toddler/preschool level made me pause and realize how many decisions we make for him.

fgvvvvvvv;l.

Practical Tip #44 Surviving Winter Months

When my boys were very young, someone gave our family an inside swing.   Both my boys loved it.  It was great for rainy and snowy days when the kids couldn’t go outside to play.  We used this item for years.

Why Now?

Last week, we went to the ER for the third time in 3 months. They were encouraging our spirits as we were taking care of our little guy-Tristan.  They were watching us handle Tristan as he was miserable from medication that was intended to help him.   These are some thoughts I had.

Practical Tip #30-A New World of Possibilities

 

I choose to work outside the home for a few reasons.  On the outside it appears raising a special needs son’s has enough challenges for each day.  That is true.  However, let me share some thoughts.

Bed Wetting Issues?–DIY Mattress Cover

Bed wetting can be a challenge. Some of our children will simply not outgrow this.   We have tried many things to keep  the mattress dry throughout the night.  I bought several different diapers and they all leak to some degree. I have also tried many different mattress covers, all of which our son has ripped apart.

Last year, we bought a new mattress.  The plastic covering that came on it was perfect!  Finally, something durable that Tristan was not ripping off.  Unfortunately the plastic cover only lasted so long.  The other day I had an idea.  I purchased a thick shower curtain, draped it over the mattress, and duct taped it on the under side.  Viola!  It has been highly effective.

Do you have products you recommend on this subject?  Do you have any tips to share

Practical Tip #15–Let it go…It Is Time To Move On

Summer is in full swing at our home. 

Practical Tip #13- Challenging Behaviors Are New Problems to Solve

Yes there are behaviors that can be challenging! 

Practical Tip #12- Friendships

  I think many people struggle in this area of life.  When a family adds a special needs family member, the whole family has a new dynamic.   This dynamic changes for every member of the family. Every ones friendships changes.  It is not right or wrong, it is just how life is.   Let me explain.  I have limited time to invest in anything. This includes how much time I can spend with friends.

Unfortunately friendships are one of the areas that can slip through the crack of my life.  I could no longer go to friends houses for a “play-dates”.  Whereas my first son, I was able to go a lot of places.  With Tristan it was too much work.  I had to adjust in my area of life with friendships.  I began hosting visits at my house to ensure safety was not an issue.   This would also keep sensory issues down so I could actually visit.  I would intentionally plan times in my weekly schedule to phone a friend.  I would send simple short notecards to friends.

In later post I will address how friendships change for my husband, teenage son, and Tristan.

How do you cultivate and maintain friendships?